In 2012, I published the book 'Een nieuwe horizon, de toekomst van de patiŽntenbeweging in Nederland'. Unfortunately, this book is only available in Dutch. Its English title would be 'A new horizon, the future of the patient movement in the Netherlands'.
So far, this book is the only book available in the Netherlands on the Dutch patient movement.
In the publication 'Fundamenteel onderzoek en patientenorganisaties, een verrassende combinatie', you can read about surprising results when fundamental researchers and patient groups are working together.
This publication was formerly part of participatiekompas.nl and can now be found here.
On September 12, 2013 our latest book appeared, which has been published in Dutch with the title 'Een zeldzame ziekte, je leeft ermee. Hemofilie als voorbeeld: lessen uit het verleden, opties voor de toekomst'
In English the title would be 'A rare disease, it's your life. Haemophila as an example: lessons from the past, options for the future'.
The cover of the book is showed above and especially the last chapter is dealing with the recent discussions in the Netherlands on the high price of the orphan drugs.