Hemophilia - Patient expert - Honorary doctor
I was born in 1951 with a rare disease, severe hemophilia.
During my life, I gained some other diseases and now I am a so-called 'patient expert'.
I have been active for more than fifty years in several patient organisations nationally and internationally and so I also became a patient advocate.
For my scientific and societal work on hemophilia, patient participation and biotechnology, I received an honorary doctorate from the college of deans of the University of Amsterdam in 2003.
In August 2020 my autobiography ‘Surviving hemophilia’ has been published in
English and in 2021 a Dutch version will follow March 2021.
For more information, see:
This movie tells you more about my autobiography.
On the following pages you can find more information on my publications, work
on food and nutrition as well as my paintings.
For more information: email@example.com